Wednesday, June 25, 2008

Chinese Fire Drill

So we've decided that in order to keep our sanity (and our hair), we needed to shuffle kids around and give them each their own space and room.  So how do you fit 3 kids in a 3 bedroom house?? Ha!  You play chinese fire drill with the rooms!

Enzo doesn't do well with transition and changes. Ok I lied, he doesn't do changes and transitions period. So when we moved him out of his room (the "beach room" as he likes to call it) and into Ethan's room for them to share, that was more than enough to mess him up and the boy has only slept 2-3 hrs a night since (when we're lucky!)

We have a a separate dining room that we turned into a play/tv room last year for Ethan and Enzo.  We never used it as a dining room because we have an eat in kitchen.  And as a play/tv room, they never really used it either!  Ethan would sit in there to play on the computer once in a while, but not enough to justify keeping the space as is.

So figured we can turn it into an extra bedroom.  We'll eventually close it off with a door but for what we need right now, it actually worked out perfect! (God is good right??)

Ethan needed his own space that the 2 little kids really wouldn't go into.  Enzo just wanted his 'beach room' back and E need her room to be more 'nurse'-friendly and less Enzo-friendly.  Besides, E only plays wherever Enzo is and doesn't care to be in her room.

So, when we played chinese fire drill, Enzo got his 'beach room' back and he slept in it without a fight last night!  Ethan got his pre-teen space back without his little siblings in his business, and the nurse was so thrilled that we moved E to her new room!  She said she wanted to suggest it when she first came, but didn't want to intrude.

Plus, E's room is much closer to my room, which really is better for her and us.    No more Enzo around her medical equipment!

Now all I need to do is move our medical supply store to her new room...Yikes! just when I got majority of it organized and labeled!

Saturday, June 7, 2008

I'm drowning in my zoo!

Ok I have to keep this short because my zoo is calling...

This is E's 2nd day home...E is starting to come down with a cold or something, but simple illnesses are always more complicated for children with a ventilator and a trach.  Enzo is flipping out because of the change in routine and workers/nurses that are in and out of our home and just not having more time for him.  Ethan's legs and ankles have cramped up again where he can barely walk (he gets like this once to twice a year).  Toots has been sick so he's jumped ship for a little while.

Toots started with a bad toothache that spread to his face and neck. Meds weren't working and he couldn't handle it anymore so he went to the ER at 215am only to been seen by a Dr at 730am for 5 mins and gave him meds without looking at anything else.  But by this afternoon he's been super dizzy and nauseous (not sure if it's the meds or not)

My zoo is outta control!  I'm out numbered by kids that all need and want attention...so pray quick!

ps....all this with an hour and a half of sleep.  i thought having an overnight nurse meant sleep for me??