Tuesday, November 23, 2010
Monday, August 30, 2010
Friday, August 27, 2010
This year we didn't get to put up our traditional blow-up birthday cake. We couldn't find the plug! I was kind of bummed because we've done that since Ethan was 5 or 6? But that's ok, a birthday movie with the cousins made up for our lack of props. ;)
My Cliq needs a better camera or at least a flash.
Love, Me =D
Happy Birthday Baby-boy, hope you had a fun filled weekend!
Thursday, August 19, 2010
One more sleep and he'll be 6!
Friday, August 6, 2010
Wednesday, August 4, 2010
I was so worried about trying to stick with Enzo’s GFCF diet while out of town. Even though everywhere I’ve read, people have said that Disney is the best place to be while on the diet. However they did strongly recommend to contact Disney a couple of weeks ahead of time so they can walk you through it and to make sure at least one dining area can accomodate your needs. Well I didn’t have a couple of weeks and I didn’t call. So when it was lunch time, we found a fast food place (we’re talking greasy burgers and all the good stuff) to ask if they at least have a fruit cup or anything packaged just to fill Enzo’s belly. They called one of the managers over and she said they have substitutes for everything and will cook it any way we needed! WOW…well this lady pulls out a notebook that has every ingredient listed for everything on their menu PLUS a list of additional GFCF items they carry!
So after asking me what we’d like, this lady walks me to the register and orders for us…then they prepare the GFCF food in a separate kitchen. The food items are placed in CLOSED containers, I guess they are really careful about any kind of contamination. One of the staff from the special kitchen walks it to your tray. It was awesome! Definitely the easiest order I’ve ever done for Enzo…it must have tasted pretty good too because Enzo gobbled it up!
Sunday, July 25, 2010
- Enzo has been incredibly…not his usual Enzo self in a good way I might add! “A happy Enzo is a happy family” is the motto around here….
- It has been soooooooooooooooo crazy hot!
- Lizzie and her trach aren’t exactly BFF’s with swimming pools or any standing water for that matter.
Hope we can sneak in a few more pleasant weekends like this before summer is over!
Click here to read about other families and their summer fun!
Friday, July 23, 2010
Just wondering because the day we started the GFCF diet (we started with casein first), I filled out the survey. Actually I think I may have been a bit modest when filling out the survey because I didn't want to see this crazy result. Well that was the baseline score and today I redid the survey for the 2 week score (since it's been two weeks since we started - 2 weeks CF and only 1 week GF). Maybe I did something wrong because the scores are off...or maybe he really did improve? hmmm I'll get to that on another post but I do have updates on our GFCF journey even tho it's only been 2 weeks.
There was an SPD blog that I came across a couple of weeks ago that use the ATEC survey to follow her child along. That's where I got the link and the idea to do so, but now I can't find it...if that's you (I know I know it's a long shot but you never know who reads your blog) or you've come across that blog and you know what I'm talking about, can you send me that link pls?
Monday, July 5, 2010
I just need to at least get past breakfast meals. The only foods my kids ever eat for breakfast is cereal and milk or waffles....all of which contain milk (products).
I have a feeling this is going to be a long week....this better be worth it!
And what happens to the families or where would they go? Esp if there is only that one doctor in your area.
Sunday, June 27, 2010
He makes me laugh! And trust me, any SPD parent will tell you that a sense of humor is a MUST. We even laugh when no one else is laughing (probably because it wasn’t that funny to begin with).
Last Sunday on our drive home from church, I was telling him about a YouTube post someone had on their Facebook. So I had him repeat what they said. He kept saying it over and over. I was laughing so hard and he still wasn’t getting it. Oh it was hilarious!
Ok so you had to have been there to find that funny. It’s still funny today tho…LOL!
ps. I’d repeat the joke but you probably wouldn’t find it that entertaining. We’re just easily amused and crack up at the most random things that no one else laughs at. =D
Click here to read about other SPD Dads
Saturday, June 12, 2010
So I look up this new fascination of his.... when I showed him a few pictures online, he verified that it indeed was his 'milipeder'
Thursday, June 10, 2010
Any one have any insight on SPD and the gluten-free diet? How and where do I even begin? There's so much info on the internet that I'm lost! Help please...And it sounds like a lot of work and effort so I want to make sure that it's worth the energy and time.
Wednesday, June 9, 2010
me: Wear my what?
Enzo: Wear your eye-tacs because you are not very pretty with glasses.
me: What are eye-tacs?
Enzo: You know, your eye-tacs so you can see. I don't like you with glasses. You haven't weared your eye-tacs in a long time.
Saturday, June 5, 2010
My mind is running at crazy speeds lately that I can't even think straight, so maybe browsing the web about SPD and other parent blogs for tips and just to feel a sense of 'normal because we're not the only one' probably wasn't such a bright idea at this hour.
I came across a link to this article on another SPD blog (I can't think which one at the moment because I was reading a few tonight):
It's by Dr. John Rosemond. This article has left me totally speechless (not to mention angry)! You have got to be kidding! I WISH our struggles with Enzo was as simple as taking everything out of his room. I WISH it were that simple because I'd be tossing everything out of his bedroom right now instead of writing this blog.
I'm exhausted and drained...
Thursday, June 3, 2010
To start...we finally got an appointment to see a Developmental Pediatrician but of course the process is long and tedious. The first part of the process before we can even start the 'process' of anything, we had to meet with one of the workers and do a basic interview about our family and child and why we needed to be there...well well well...we were told pretty bluntly that they don't 'acknowledge' SPD because there are no scientic research and that SPD doesn't come and go...duh I know that! (Clearly this lady hasn't ever lived with a child with SPD.)
She was surprised that my child sat through the entire interview and was able to play with the legos and answer questions...AGAIN this lady really has never lived with SPD. My child was able to sit there because I made sure that we really did ALOT of sensory work and spinning (we do the astronaut spinning program) and it really helps his sensory alot!
But by the end of the appointment I felt like a failure and felt like all this work was useless and that any progress was all in my head and that my child was merely a behavior issue.
Well here were are a couple of weeks later at the peak of Enzo's overload and meltdowns. I'm racking my brain trying to figure out where I've gone wrong or what we've missed. I know part of my hang up is that stupid appointment. But tonight after another sleepless night, I had an 'Aha! Moment'.
His sensory goes in overdrive anytime there is change...the anxiety in him is so unbelievable high and makes it all go down hill.
I think our culprit is the anxiety about moving on to the 1st grade. I can't believe I'm even excited that he's anxious about it but I think I'm just excited to know what may bugging Enzo.
I'll have to probe and see but hopefully I'm right...so for now my excitement will have to wait until the little guy gets up.
Poor kid, I've been sooooooo rotten to him too! I can't even begin to imagine what is running through his head....
Saturday, April 3, 2010
Thursday, April 1, 2010
He's doing a lot of bug chasing and hollering today =) Crazy thing is, he's not even outside. He notices all the creepy crawlies that are outside his window.
Do other SPD kids do that? My friend's son is that way too...it is kind of funny when you step back but when all I've heard all day is the hoots and hollers, ummm yeah, I'm not seeing the humor in it right this minute. =}
Saturday, March 13, 2010
Really?? We walk in a restaurant (any place really that has a lot of random unorganized noise) and it's too loud for him. It's really not all that loud but too loud for him nonetheless. He looks funny, still cute tho (Thank you Lord for such a cute face!). But hey I'm not complaining, especially when it keeps him still and focused on what's in front of him. I mean really...funky head accessory or a spazzed out Enzo??
Yes, I choose the funky fashion too. =)
Wednesday, March 10, 2010
We hope that our stories helps other families find humor in the midst of frustrations and struggles. There is light at the end of the tunnel and our kids, like many children with SPD, are like butterflies waiting to emerge!
We truly believe they can and will emerge when we begin to understand what SPD means for our family and find ways to help and relate to our child's sensory world. We're not therapists, so please don't take our own experiences as that. But having the opportunity to have worked with awesome therapists that really know SPD, has given us a wealth of information to help our child, along with lots and lots of reading (more internet than books tho). Knowledge is key to helping your child and family!
While each child and family is different, what works for our family may not work for yours. Even some of the things that our therapists have 'highly' suggested for us haven't always worked for our family. SPD is part of our life, so the activities surrounding us has to work with our life. But no therapist knows your child and family the way you do, don't give up and things don't have to be done by the book. Find what your child enjoys based on what he needs. Find what works with your family or if you like something, find a way to change it up to make it work for you. We get creative like that too!
We have yet to purchase a true SPD item. Sensory stuff can get expensive, esp the weighted items. So the budget part doesn't work for us, BUT we've found alternatives to some of the weighted items and sensory things that we've purchased and even made!
So what does this blog mean for you? We hope you enjoy our stories but we want to hear yours too! If you'd like to share your day with us, email us! We'd love to have other families share their stories. We want to hear from other families too and get ideas or even just to feel 'normal'. Most likely, that's how you found this blog right? If not that's ok too!
It's one thing to hear from and talk to our therapists but it's another to live with SPD. For now, there isn't a local group in our city that serves as a resource or support for families with SPD (not autistic). We hope to change that soon, but that still requires more planning and thought. So for now, here we are! We're looking forward to sharing our crazy life with you and hope to hear from other families too!
Friday, March 5, 2010
Enzo craves being snuggled, squished and rolled...some days more than others. So when he asked to be rolled up in this crazy soft blanket, it was a welcomed request on this particular morning. Yes, our day had barely started and we were more than ready to be squished. He has his pj's on to prove it! Oh what a day! =) Btw, his choice of pj's is another post for another day.
So he was telling us a story as I rolled him up. He said he was like a caterpillar in a cocoon - spinning and spinning. Then one day struggle to come out as a butterfly. Although half way through his story he remembered a story we listened to for history (Story of the World by Susan Wise Bauer). King Tut was carefully wrapped with cloth and 'smell good stuff' - his mummy. But in the end he decided he was a butterfly because King Tut didn't come out of his mummy cloth.
Thursday, February 25, 2010
The chill in the air you are so graciously providing is turning my Enzo into a sensory mess. Please make up your mind - cold or warm?
Better yet, how about leaving us with consistently beautiful, yet breezy, spring weather...one that will leave Enzo focusing his sensory energies elsewhere. =)
PS. Please reconsider your cold wet days too. The sound of your raindrops, along with the chill in the air, keeps the yoga ball occupied...A LOT! I'm sure Mr. Yoga Ball would appreciate a break, as would my arms and back. Feel free to use the picture below as inspiration for your decision. Thanks.
Wednesday, February 24, 2010
[via SPD Foundation]
I found these today on the Sensory Processing Disorder Foundation website. They have these to print out as cards for over-whelmed SPD parents. Where was this 3 years ago? haha would have been so much easier than trying to explain something I couldn't understand either.
HOWEVER, now that its been almost 3 years since Enzo's diagnosis, this (in my opinion) comes across apologizing for my child's disability. Not sure how I feel about that because I don't think anyone should have to apologize for their child's disability. But then again when you're an over-whelmed mom that's kind of what you (or we) do right? I guess this would be pretty useful for the over-whelmed parent who can't figure where to even begin explaining. I should know, we were there and still are a lot of the time.
But hey at least my kid has an excuse for being a nut and all over the place...what's your child's excuse?? haha I am SOOOOOOOOO just kidding!! =)
You know God definitely has a sense of humor. What are the chances that God would give one family 2 kids that have SPD and the kids aren't even biologically related?! Not only do we have 2 kids with SPD but they are two different types of SPD kids - we have a sensory avoider/defensiveness and then we have Enzo, the sensory seeker/crasher (if you've been around Enzo, then you know exactly what that is). We make a hilarious household if you have that kind of sense of humor (which btw, I don't) And we thought Lizzie would be our high maintenance child because of her medical needs...hahaha God is showing off his sense of humor I tell ya!
For more info about Sensory Processing Disorder, please visit:
Wednesday, January 27, 2010
Good morning sunshine! or is it? We shall see! Today is the last part of Enzo's reevaluations for Occupational Therapy. He's grown in every way and has worked hard to accomplish his goals. He's been discharged from Speech and Physical Therapy for a little while now, so this is the last leg for him. After today, he could be therapy-free!
He's been all 'therapied' out for a long time now (not sure who's more 'therapied' out, me or him). He loves his therapists though, esp his OT (so do I, so I'm not sure if I'm ready to discharge her). But since a month after coming home, that's all he's known...week in and week out. So this is long over due.
Although last week when we were talking about his reevaluation and graduating from OT, he was really bummed and said he wasn't going to work hard next time. I'm hoping he forgets today =)
So...will we be marching to 'Pomp and Circumstance'?
...to be continued...